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Batten Disease Family Association

The Batten Disease Family Association (BDFA) is a national charity that supports families, raises awareness and facilitates research into the group of devastating neurodegenerative diseases commonly known as Batten Disease. 

The information and support that the BDFA provides includes:

  • What is Batten Disease?
  • Grandparent Support¬†
  • Sibling Support
  • Hospices
  • Bereavement Support

Please visit the Batten Disease Family Association website for further information.

Who to contact

Contact Name
Batten Disease Family Association
Telephone
Support: 0800 046 9832
General: 07876 682589
E-mail
support@bdfa-uk.org.uk
Website
Batten Disease Family Association

Where to go

Name
BDFA
Address
209 - 211
City Road
London
Postcode
EC1V 1JN

Other Details

Costs

Details
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