Rett UK is the only UK charity which provides professional support to the parents, carers and professionals who live and work with children who have Rett Syndrome.
Rett UK was founded in 1985 round a kitchen table by Yvonne Milne MBE. Since then we have grown to be the leading provider of information to not only families but also medical professionals new to the world of Rett syndrome.
The information and support we provide includes:-
- What is Rett Syndrome
- Family Contact Network
- Telephone and Online Support
- Advance Care Planning
- Transition and Sibling Support
- Bereavement Support
Rett Syndrome Association Uk, Victory House
- LU1 3BS