Batten Disease Family Association
The Batten Disease Family Association (BDFA) is a national charity that supports families, raises awareness and facilitates research into the group of devastating neurodegenerative diseases commonly known as Batten Disease. <SEND>
Address:
BDFA Office, Hamilton House, Mabledon Place, London, WC1H9BB
Telephone number:
08000469832
Email:
admin@bdfa-uk.org.uk
Website:
BDFA website
The information and support that the BDFA provides includes:
- what is Batten Disease?
- grandparent support
- sibling support
- hospices
- bereavement support
Additional Contact Information
07876682589
Last modified on 28 May 2025
